Public involvement in research is where the research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.

We use the INVOLVE definition of ‘public’ which includes patients, potential patients, carers and people who use health and social care services as well as people from organisations that represent people who use services.

It is essential that the public are actively involved in the planning and reviewing of NIHR funded research activities. In our research, public representatives are involved across all stages of the DEC process, illustrated below.

 



We would like public representatives to be involved in DEC activities to:
  • help set research priorities
  • improve quality by addressing the patients point of view
  • identify important questions that health and social care research needs to answer
  • give their views on research proposals alongside clinicians, methodologists, scientists, and public health and other professionals
  • help assess proposals for funding
  • take part in clinical trials and other health and social care research studies, not just as participants but as active partners in the research process
  • publicise the results of NIHR DEC Leeds activity.





Are you a researcher looking to involve patients and the public, but not quite sure where to start or what to ask? We have developed a prompt sheet to help with you public participation.